on diagnosis
The Difference Between Clinical and Just Being Hard
A woman at my daughter’s school told me last spring that she was pretty sure she was neurodivergent. Her evidence was that she gets overwhelmed in Costco and that parent-teacher night wears her out. I did not say what I was thinking, which was that Costco is a lot and parent-teacher night is exhausting, and neither of those facts adds up to a diagnosis. They do not even describe what is actually happening to her.
I have wanted to have this conversation for a while, and not the language police version where you correct strangers and tell them which words to use. The one I mean is quieter. It is about being honest that there really is a difference between a clinical deficit and ordinary human difficulty, and that the words we reach for now cannot tell the two apart.
Where the words came from
A little history explains why these words cannot do the job people keep asking of them.
“Neurodiversity” showed up in print in 1998, in an article by the journalist Harvey Blume in The Atlantic and in Judy Singer’s honors thesis around the same time. Both drew on conversations among autistic adults in the online communities of the mid-1990s. “Neurodivergent” came a couple of years later, coined by the activist Kassiane Asasumasu around 2000. None of these people were trying to build a diagnosis. They were building a social and political identity for people who had spent their lives being told something was wrong with them.
Asasumasu was explicit that the term should be broad. There was no threshold, no cutoff. The point was inclusion and dignity, not a clinical test. It helps to remember that “high functioning autism” was never in the DSM at all. Asperger’s disorder was, until 2013, when it was folded into Autism Spectrum Disorder and severity levels and specifiers were added. “High functioning” survived informally in the culture, where it came to mean roughly “has language and an average IQ,” which tells you almost nothing about how a given person is actually doing day to day.
So the two words at the center of every dinner party argument were never clinical. They were built by a community to do cultural work, and that work was real and valuable. The trouble started later, when everyone else picked the words up and used them as if a clinician could measure them.
The line I want to draw
Here is the distinction the whole piece rests on.
A clinical deficit is a stable, pervasive impairment in a specific area of functioning. It shows up across settings and not just under stress, it is present even when the conditions are good, and it started early enough to shape how the person developed. Most of all, it limits what the person can actually do, rather than what merely feels unpleasant.
Difficulty is a different thing. Difficulty is effort. It costs you something to do hard things, or things that come harder to you than to other people, but you can still do them, and it gets better with rest or practice. It does not derail your life. Difficulty is real and exhausting and deserves compassion. It is simply not a diagnosis.
Most of what people are describing when they say they are “a little neurodivergent” lives squarely in the difficulty category. Costco is sensorily overwhelming, open offices are awful, small talk is tiring, phone calls drain you, and routines are soothing. None of that is pathological. Most of it is just what it feels like to be a person in a world that was not particularly designed for human nervous systems. Calling that neurodivergence is reaching for a word that was built to name something much more specific.
Three people
Let me show you what I mean with three people.
The first is a man in his early forties who came in convinced he was autistic. He had read several articles, taken three online quizzes, and had a sister whose son is autistic, and he saw himself in her descriptions of the boy. In the evaluation his history was clear. He had always been an introvert who found groups draining and meetings exhausting and preferred deep conversation to small talk. He also had two close friends he had known for twenty years and a long marriage. At work he had advanced into roles that required reading rooms, managing conflict, and presenting to clients. None of that came easily and all of it cost him, but he could do it, and he always had been able to do it. In settings where he felt at ease he was funny, warm, and fluent. What he had was a temperament, and a job that was a poor fit for it.
He did not have a social communication deficit, so he left without a diagnosis and with an actual plan, one that structured his week to keep him from running himself into the ground. He told me later that it was the first time anyone had taken his exhaustion seriously without also telling him it meant something was wrong with him.
The second is a teenager whose friends and TikTok feed had told him he was on the spectrum. He freezes when he is called on in class, avoids eye contact with kids his own age, and replays conversations for hours afterward, convinced he embarrassed himself. He had stopped going to lunch entirely. His mother brought him in worried about autism.
His social skill was plainly intact. He was easy company with his brother and grandfather and with his two best friends, and once he warmed up in the room the examiner watched it happen in real time. He made jokes, read the room, and caught every bit of sarcasm. Take away the fear of being judged and the skill came right back. That is not autism. That is social anxiety disorder, and it is one of the more treatable things in the DSM. He started cognitive behavioral therapy with exposure work, and within four months he was back at the lunch table. Had he stayed parked at “I am just neurodivergent,” he might have spent another five years adapting to a problem he did not have instead of treating the one he did.
The third is a woman in her late thirties who came in for an ADHD evaluation. As the history unfolded, the picture turned out to be more complicated. She had always felt one step behind socially. She scripted conversations in her head before they happened, and found ordinary social interaction so depleting that she needed two days alone after a wedding. She had spent her life copying other women, watching what they did and doing it back. She was bright and polished, a high performer at work, and nobody had ever flagged a thing. Her sensory sensitivities were significant and lifelong, her interests had always been narrow and intense, and her social difficulty was not driven by fear. It was there even when she was completely calm, and even when she was surrounded by people she loved. The evaluation came back as Autism Spectrum Disorder, the presentation that gets missed in girls and women over and over because they mask so well.
She cried in the feedback session, and not because she was sad. For the first time in thirty-eight years she had an explanation that was accurate to her own life. That is a deficit. The difference between her and the first man is not a matter of degree, and they are not sitting at two ends of the same spectrum. What is happening in each of them is a different thing entirely.
Now watch what happens when we use the same word for all three. The man with introversion has one experience and the woman with autism has another, and they do not need the same support. The teenager with social anxiety misses treatment that actually works and works fast. When the language flattens, calibration breaks. The people with the highest need disappear into the “oh, same” chorus, the people who need a specific kind of help never go looking for it because they have already decided they understand themselves, and everyone around them, clinicians and teachers and partners and employers, loses the ability to respond differently to different things because everything is being described in the same vocabulary.
This is the cultural drift I think we should be honest about. The neurodiversity movement did something genuinely good. It pushed back on the idea that every difference is a defect to be cured, and it gave autistic and ADHD adults permission to stop apologizing for how they are built. That work mattered and it still matters. But over the last decade the language slipped its tether and became a way of saying “I find some things hard,” which is true of every human being alive. There is a difference between something that is hard to do and something that is clinically interfering with your life. When a word comes to mean everyone, it stops meaning anything, and the people it was built to describe lose the only word they had.
What I actually want
I do not think people use these terms loosely out of carelessness. They use them because unnamed difficulty feels like a personal failing, and any name at all brings relief. That instinct is correct and the relief is real. The problem is that the wrong name closes the door on the right one. If you have social anxiety, calling it neurodivergence will not get you to the treatment that would help. If you have autism that has been missed for forty years, “everyone feels that way” is the sentence that stops you from getting the evaluation that would finally explain you to yourself. If you have a temperament and a bad job fit, the answer is to redesign your week, not to chase a diagnosis that would validate how tired you are.
There is a version of this conversation whose whole point is “stop saying neurodivergent,” and that is not mine. What I want is for the words to do the work they were meant to do. If you mean “I find the modern world hard,” say that, and you will get sympathy from nearly everyone, because nearly everyone agrees. If you are wondering whether something specific and lifelong and genuinely limiting is going on, say that instead. It is a different sentence, it deserves a different response, and it calls for a careful evaluation by someone trained to tell a deficit from a difficulty.
Both sentences are honorable. They are just not the same sentence, and the gap between them is where most of the help lives.
#CenterForBalancedLivingDE #CFBL #PsychologicalEvaluation #MOTarea #MiddletownDE
